Resources - After Breast Cancer Diagnosis

Resources

This resource list contains websites and references that have been vetted and curated by ABCD to provide a reliable source of cancer-related information and services for ABCD Mentors and Participants, along with their family and friends.

If you find a resource that would be a good addition to this guide, or a local resource that we could share with others, please send the details to info@abcdmentor.org.

As you use this guide, if you find a link or phone number that no longer works, please notify us at info@abcdmentor.org.

Advocacy

Breast Cancer Action

415-243-9301 | info@bcaction.org

Breast Cancer Action (BCAction) is a national feminist grassroots education and advocacy organization working to end the breast cancer epidemic.

FORCE

866-288-7475 | info@facingourrisk.org

Improves the lives of the millions of individuals and families facing hereditary breast, ovarian, pancreatic, prostate, colorectal and endometrial cancers.

Keepers Of The Flame Foundation

joyce@togetherweweather.org

KotF is a non-profit that shines light into the darkness, empowering breast cancer patients to weather breast cancer both physically and emotionally.

Know Your Lemons Foundation

801-410-0231 | hello@knowyourlemons.com

KotF is a non-profit that shines light into the darkness, empowering breast cancer patients to weather breast cancer both physically and emotionally.

METAvivor

advocacy@metavivor.org

METAvivor is a non-profit that raises awareness, advocates for and provides information and support to people living with metastatic breast cancer. They fund research to benefit people with stage IV breast cancer.

My Density Matters

847-902-0659 | info@mydensitymatters.org

To empower women to find out their breast density, learn their screening options, and insist on essential additional screening.

Nancy’s List

Nancy@NancysList.org

Nonprofit cancer support organization that provides information on support groups, healing and educational events, financial assistance, employment. rights, insurance resources, and more.

National Breast Cancer Coalition

800-622-2838 | info@stopbreastcancer.org

NBCC’s mission is to eradicate breast cancer by focusing the administration, U.S. Congress, research institutions, and consumer advocates on breast cancer.

Pink Lemonade Project

360-952-3814 | admin@pinklemonadeproject.org

Non-profit organization that educates, supports, and empowers those affected by breast cancer in the SW Washington & Oregon area.

Pink Ribbon Good

877-269-5367 | info@pinkribbongood.org

Exists to serve every person and family affected by breast and gynecological cancer. Provide free healthy meals, rides to treatment, housecleaning. essentials, and peer support.

Tigerlily Foundation

888-580-6253 | info@tigerlilyfoundation.org

National Women’s Health and Oncology Organization Providing Education, Awareness, Advocacy and Hands-On Support To Young Women (15-45) – Before, During And After Cancer.

Tower Cancer Research Foundation

This includes the Dr. Susan Love Fund for Breast Cancer Research.

Twisted Pink

502-890-2662 | info@twistedpink.org

Providing hope and connection to people living with metastatic breast cancer by funding bold breakthroughs in research and awareness of the disease.

SHARE Cancer Support

212-937-5586 | jgolden@sharecancersupport.org

National nonprofit that supports, educates, and empowers anyone who has been diagnosed with breast or gynecologic cancers, and provides outreach to the general public about signs and symptoms.

Appearance Products & Programs

American Breast Care

866-830-1990 | social@americanbreastcare.com

Leading producers of post-mastectomy products supplying mastectomy bras, breast forms, custom prosthetics, post-surgery products & accessories worldwide.

AnaOno

866-879-1744 | cs@anaono.com

AnaOno bras are handcrafted with buttery soft modal material, wire free designs, and soothing mesh to help soothe your scars.

Awesome Breast Forms

Free knitted cotton breast forms – light weight and cooler than commercial breast prostheses.

Bras for a Cause

Accepts donations of all mastectomy products/clothing -includes instructions for shipping.

Connie Cares

FREE lymphedema compression pumps to post-cancer patients anywhere in the U.S.

EBeauty

A non-profit organization that accepts donations of wigs and offers them to women who are undergoing chemotherapy treatments.

EverYou

EverYou is an offering from the American Cancer Society (ACS) where each product is carefully chosen by ACS experts in partnership with people living with cancer.

Good Wishes

888-778-5998 | info@goodwishesscarves.org

Provides one It’s a Wrap or Good Wishes scarf free of charge to anyone experiencing the thinning or loss of hair as a result of illness or treatment.

Heavenly Hats

920-362-2668

Provides free, new hats for cancer patients or others with medical conditions who lose their hair due to disease or treatment for a disease – ships anywhere in the U.S.

Hope Scarves

502-333-9715 | lara@hopescarves.org

Collect scarves from around the world and stories from cancer survivors and pair them together to spread hope to others in treatment.

Knitted Knockers

contact@knittedknockers.org

Free knitted lightly stuffed breast prostheses-light weight and comfortable, sized by bra size.

Mastectomy Solutions

Blog posts, resources and information addressing various mastectomy clothing, undergarments, breast forms and comfort needs including sewing instructions and tips for adapting one’s own clothing after mastectomy.

Paula Young

Affordable wigs, wiglets, and hair pieces

Pink Pockets

Peel and stick pockets to attach to clothing temporarily to hold post-surgical drains – no safety pins or sewing required. Available for purchase.

Ruby Ribbon

Ruby Ribbon has camisole and bra products that are wireless and can assist with torso compression.

Second Act

pattie@secondactchicago.com

Accept donations of gently used prostheses and mastectomy bras. Offers bras, wigs, recovery garments, fashion accessories, and more for patients recovering from surgery.

Tiger Lily Collective

Tiger Lily Permanent Makeup. Areola tattoos for breast cancer survivors.

Tricia’s Troops Cancer Connection

A non-profit organization that provides resources and accepts donations of wigs and offers them to women who are undergoing chemotherapy treatments.

Caregivers & Family Members

Caregiver Action Network

202-454-3970 | info@caregiveraction.org

CAN is the nation’s leading family caregiver organization working to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. The website includes forums and resources.

Little Pink Houses of Hope

336-213-4733 | media@littlepink.org

The free, week-long retreats offered through Little Pink Houses of Hope allow patients and families to reconnect, rejuvenate, and celebrate life in a new way.

Lotsa Helping Hands

Service that brings together caregivers and volunteers through online communications, forming communities to support/assist with daily life needs during times of medical crisis or caregiver exhaustion.

Mighty and Bright

415-640-0504 | help@mightyandbright.com

Provides visual schedules and resources to support children through significant life changes, such as a parent’s cancer diagnosis or transitions within the foster care system.

National Cancer Institute

800-422-6237 | M-F 9am to 9pm ET | English or Spanish

Information to help caregivers cope while caring for a loved one with cancer.

Pickles

contact@picklesgroup.org

Provide free peer-to-peer support and resources for kids and teens impacted by their parent or guardian’s cancer.

Susan G. Komen

Information to assist family members and friends of breast cancer patients.

Clinical Trials

Breast Cancer Trials

Breast Cancer Trials is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care.

Emerging Med

Clinical trial matching service that will help people find appropriate clinical trials and trial sites matching to their specific diagnosis, stage, symptoms and treatment history.

Grasp

Connect advocates & cancer researchers to advance breakthroughs in cancer research and treatments.

National Cancer Institute

800-422-6237 | M-F 9 a.m. to 9 p.m. ET | English or Spanish

Find NCI-Supported Clinical Trials

When We Tri(al)

When We Tri(al) is an organization that encourages Black women to participate in clinical breast cancer trials.

Complementary and Alternative Approaches

Office of Cancer Complementary & Alternative Medicine (NCI)

240-276-6595 | ncioccam1-r@mail.nih.gov
Identifies and develops novel complementary and alternative medicine therapies to treat cancer. Literature available online.

Counseling and Support Groups

Breast Cancer Recovery

info@bcrecovery.org

Only non-profit organization in Wisconsin and the first in the nation to offer retreats to women at all stages of breast cancer so they can begin to heal emotionally.

Cancer Care

800-813-4673 | info@cancercare.org

This organization has a staff of oncology social workers to provide support, information and resources to cancer patients. Online support groups are available.

Cancer Support Community

888-793-9355 | M-F 9am-5pm ET.

In person and online support groups available

My Cancer Family

family@mycancerfamily.com

Dedicated to supporting individuals and families affected by cancer. They offer a range of services designed to provide emotional, practical, and educational support.

This is Living with Cancer

Pfizer developed This Is Living with Cancer™, a program developed to support all people in their cancer journeys. We offer tools to help people living with cancer live life beyond their diagnosis.

Unite For Her

Their vision is that every person with breast and ovarian cancers will feel the support of a loving community, and will have access to comprehensive education, services, and tools that enrich their health and well-being.

Young Breast Cancer Project

hello@youngbreastcancer.org

Advocates for early detection of disease through breast health education. Elevate young survivors’ stories and forge alliances with the medical community to reduce delayed diagnoses and help save lives.

Crisis Assistance

American Cancer Society Help Line

800-227-2345

Cancer information, answers, and hope. Available every minute of every day. Their 24/7 cancer helpline provides support for people dealing with cancer. We can connect you with trained cancer information specialists who will answer questions about a cancer diagnosis and provide guidance and a compassionate ear.

National Suicide & Crisis Lifeline

Dial 988

The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals in the United States.

Cultural, Gender, and Language

African American Breast Cancer Alliance (AABCA)

AABCA provides education and support for Black Americans in their journeys with breast cancer and survivorship.

African American/Sisters Network

866-781-1808 | infonet@sistersnetworkinc.org

National organization with local affiliate chapters in some cities.

Sisters Network® Inc. Breast Cancer Assistance Program (BCAP) provides financial assistance to women in active treatment. The program also provides mammograms for underserved and uninsured women.

American Indian Cancer Foundation

612-484-9670 | info@aicaf.org

AICAF eliminates the cancer burdens of Indigenous people through improved access to prevention, early detection, treatment, and survivor support.

Cancer Information in Other Languages

Information about cancer including prevention, early detection, treatment, and managing side effects in multiple languages.

For the Breast of Us

For the Breast of Us provides support and resources to empower women of color affected by breast cancer.

HIS Breast Cancer Awareness

Increase awareness and hence the early detection for all men and to help those who are at high risk due to genetics and other risk factors to gain access to regular screenings.

Indian Cancer Society

91-22-2413-9445/51| info@indiancancersociety.org

ICS is creating nationwide awareness of cancer, its risk factors, preventive measures, encouraging regular checkups, treatment options and survivorship.

Intercultural Cancer Council (ICC)

Fact sheets –American Indians/Alaska Natives, African Americans, Asian Americans, Hawaiian and Pacific Islanders, Hispanic/Latino, Rural Residents, Elderly Individuals.

Male Breast Cancer Global Alliance

866-540-8722 | cheri@mbcglobalalliance.org

Bring together men with breast cancer and researchers, clinicians and oncologists around the world for the purpose of advancing research, clinical trials and treatments for men diagnosed with breast cancer.

Male Breast Cancer Happens

913-362-2196 | mmgpeggy@gmail.com

Not-for-profit patient advocacy organization brings everyone together to educate the world about male breast cancer.

The National LGBTQ+ Cancer Network

Support and resources for LGBTQ+ Patients and Survivors

Sharsheret

866-474-2774 | info@sharsheret.org

Sharsheret, which is the Hebrew word for chain, is a national non-profit organization supporting young women and their families of all Jewish backgrounds facing breast cancer. Services, support, and resources are offered for partners, children, parents and friends.

Touch, The Black Breast Cancer Alliance

Touch, The Black Breast Cancer Alliance (TOUCHBBCA) collaborates across the breast cancer ecosystem to work towards the common goal of ending Black Breast Cancer.

Decision-Making

Bag It Cancer

520-575-9602 | info@bagitcancer.org

Provide every cancer patient with the Bag It resource bag. Our materials are designed to conquer fear through information and to empower patients to be more involved in their care and become self-advocates.

General Decision Guide

The Ottawa Personal Decision Guide (OPDG) is designed for any health-related and/or social decisions. It can help people assess their decision-making needs, plan next steps, and track progress in decision making.

Cancer.net

This is a part of the ASCO patient information site-Making Decisions About Cancer Treatment

Diagnosis, Treatment, and Side Effects

Are you Dense?

Are You Dense, Inc. is dedicated to informing the public about dense breast tissue and its significance for the early detection of breast cancer.

BreastCancer.org

Information is provided through their website only:

Cancer.net

This is the Patient site presented by ASCO. Information is included about general breast cancer diagnosis and types, Inflammatory Breast Cancer, and Male Breast Cancer. Information is also provided in Spanish.

Connie Cares

FREE lymphedema compression pumps to post-cancer patients anywhere in the U.S.

HER2Support.org

Information provided about HER2 specific drug therapies, Metastatic HER2 Breast Cancer and treatments by sites.

IBC Network Foundation & IBC Research

The purpose of the IBC (Inflammatory Breast Cancer) Network Foundation is to fund research regarding Inflammatory Breast Cancer and to provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer. They also provide information included on the website about IBC, understanding the research, and photos of diagnosed cases of IBC.

The Lobular Breast Cancer Alliance (LBCA)

Promoting research that advances prevention, diagnosis, treatment and follow up care for patients with lobular breast cancer. Patient educational information on website.

Metaplastic Breast Cancer Global Alliance

The Alliance raises global awareness of metaplastic breast cancer, consolidates knowledge and supports research.

Swedish Cancer Institute

1-855-XCANCER

We fight cancer using every available tool, from the rapidly developing science of gene sequencing to innovative treatments and therapies to the compassionate caring and support you and your loved ones deserve.

Young Survival Coalition (YSC)

877-972-1011

Information and support for young women diagnosed with breast cancer.

Financial and Insurance Assistance

Angela Andrade Foundation

This foundation provides assistance to metastatic breast cancer patients who are permanent US residents receiving treatment in the US.

Benefits Checkup (over 55)

This service of the National Council on Aging locates programs for those 55+ that will help pay for prescription drugs, health care, utilities, and other essential items/services.

Cancer Care

800-813-4673

Organization that can help with costs related to transportation to and from cancer treatment, childcare, home care, pain medication, Lymphedema supplies, wigs for breast cancer patients, co-pay assistance.

Ceridian Cares

Provides grants for basic needs (i.e. food, clothing, essential home repair) and Quality of Life (i.e. medical & mobility devices and special needs care).

Healthwell Foundation

Provides financial assistance to insured patients living with chronic and life altering illnesses to help them afford their medical treatments. Their help is with prescription drug co-pays, deductibles, and health insurance premiums for important medical treatments.

Hill-Burton Program

Hill-Burton free care is available to those whose income is at or below the current HHS Poverty Guidelines.Hill-Burton reduced-cost care is available to those whose income is as much as two times (triple for nursing home care) the HHS Poverty Guidelines.

Hope Lodge (American Cancer Society)

Throughout the US, over 30 Hope Lodges offer cancer patients and their care givers a free place to stay when their best hope of effective treatment may be in another city. Accommodation may vary by location.

Komen Financial Assistance Program

Financial assistance application for breast cancer patients currently in treatment or living with metastatic (Stage IV) cancer. *Must meet eligibility requirements.

Livestrong Fertility

Including financial help for fertility solutions.

Meals on Wheels

888-998-6325 | Offers community-based senior nutrition programs

Medicine Assistance Tool

Search engine designed to help patients, caregivers and health care providers learn more about the resources available through the various biopharmaceutical industry programs.

My Hope Chest

Provides financial support, covering the entire or partial cost of reconstruction for un- or underinsured mastectomy patients.

National Breast Cancer Foundation (NBCF)

Information about free mammography programs

National Breast and Cervical Cancer Early Detection Program

Website provides information about access to breast and cervical cancer screenings to underserved women in all 50 states, DC, and 5 US territories.

Needy Meds

800-503-6897 | info@needymeds.org

Comprehensive information on programs that help people facing problems paying for medications and health care AND to assist those in need in applying to programs.

Patient Access Network

The Patient Access Network Foundation offers help to people with chronic or life-threatening illnesses for whom cost limits access to breakthrough medical treatments.

The Pink Fund

Provides 90-day non-medical cost-of-living expenses on behalf of breast cancer patients in active treatment only.

The Singletons

The Singletons is a homegrown, Arizona based, nonprofit devoted to meeting the needs of single-parent families battling cancer by providing strength, hope, resources and community. Here at The Singletons, we are a family.

Triage Cancer

424-258-4628 | info@triagecancer.org

National, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.

United Way

Dial 211 in the US – Crisis assistance for shelter, housing, utilities, supplemental food, nutrition programs.

US Department of Housing & Urban Development (HUD)

800-225-5342

Information for public housing programs such as housing choice vouchers.

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